Bill Text: CA SR23 | 2015-2016 | Regular Session | Enrolled

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Bill Title: Relative to Congenital Diaphragmatic Hernia Awareness Month

Spectrum: Partisan Bill (Republican 1-0)

Status: (Passed) 2015-04-30 - Read. Adopted. (Ayes 36. Noes 0. Page 838.) [SR23 Detail]

Download: California-2015-SR23-Enrolled.html

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BILL NUMBER: SR 23	ENROLLED
	BILL TEXT

	ADOPTED IN SENATE  APRIL 30, 2015
	ADOPTED IN ASSEMBLY  APRIL 22, 2015

INTRODUCED BY   Senator Fuller

                        APRIL 22, 2015

   Relative to Congenital Diaphragmatic Hernia Awareness Month


	LEGISLATIVE COUNSEL'S DIGEST
             HOUSE OR SENATE RESOLUTIONS DO NOT CONTAIN A DIGEST



   WHEREAS, Congenital diaphragmatic hernia (CDH) occurs when the
diaphragm fails to fully form, allowing abdominal organs to migrate
into the chest cavity and preventing lung growth; and
   WHEREAS, The federal Centers for Disease Control and Prevention
recognizes CDH as a birth defect; and
   WHEREAS, The majority of CDH patients suffer from underdeveloped
lungs or poor pulmonary function; and
   WHEREAS, Babies born with CDH endure extended hospital stays in
intensive care with multiple surgeries; and
   WHEREAS, CDH patients often endure long-term complications, such
as pulmonary hypertension, pulmonary hypoplasia, asthma,
gastrointestinal reflex, feeding disorders, and developmental delays;
and
   WHEREAS, CDH survivors sometimes endure long-term mechanical
ventilation dependency, skeletal malformations, supplemental oxygen
dependency, enteral and parenteral nutrition, and hypoxic brain
injury; and
   WHEREAS, CDH is treated through mechanical ventilation, a heart
and lung bypass, which is commonly known as extracorporeal membrane
oxygenation (ECMO), machines, and surgical repair; and
   WHEREAS, Surgical repair is often not a permanent solution for CDH
and can lead to reherniation and require additional surgery; and
   WHEREAS, CDH is diagnosed in utero in less than 50 percent of
cases; and
   WHEREAS, Infants born with CDH have a high mortality rate,
averaging 50 percent, regardless of the level of severity of the
defect; and
   WHEREAS, CDH has a rate of occurrence of 1 in every 2,500 live
births worldwide; and
   WHEREAS, CDH affects approximately 1,600 babies each year in the
United States; and
   WHEREAS, CDH has affected more than 700,000 babies worldwide since
2000; and
   WHEREAS, CDH does not discriminate based on race, gender, or
socioeconomic status; and
   WHEREAS, The cause of CDH is unknown; now, therefore, be it
   Resolved by the Senate of the State of California, That the Senate
declares the month of April 2015 as California Congenital
Diaphragmatic Hernia Awareness Month, and calls upon all Californians
to observe the month of April by participating in appropriate
activities and programs; and be it further
   Resolved, That the Senate encourages that steps should be taken
to: (1) raise awareness of and increase public knowledge about CDH;
(2) inform all Californians about the dangers of CDH, especially
those groups that may be disproportionately affected by CDH or that
have lower survival rates; (3) disseminate information on the
importance of quality neonatal care of CDH patients; (4) promote
quality prenatal care and ultrasounds to detect CDH in utero; and (5)
support research funding of CDH to improve screening and treatment
for CDH, discover the causes of CDH, and develop a cure for CDH; and
be it further
   Resolved, That the Senate encourages residents, interest groups,
and affected individuals to take an active role in the fight against
this devastating birth defect; and be it further
   Resolved, That the Secretary of the Senate provide copies of this
resolution to the author for appropriate distribution.