STATE OF NEW YORK
        ________________________________________________________________________

                                          2221

                               2023-2024 Regular Sessions

                   IN ASSEMBLY

                                    January 25, 2023
                                       ___________

        Introduced  by M. of A. HYNDMAN -- read once and referred to the Commit-
          tee on Health

        AN ACT to amend the public health law, in relation to  prenatal  trisomy
          diagnosis awareness

          The  People of the State of New York, represented in Senate and Assem-
        bly, do enact as follows:

     1    Section 1. The public health law is amended by adding  a  new  section
     2  2533 to read as follows:
     3    §  2533. Prenatal trisomy diagnosis awareness. 1. For purposes of this
     4  section, the following terms shall have the following meanings:
     5    (a) "Health care  practitioner"  means  a  medical  professional  that
     6  provides prenatal or postnatal care and administers or requests adminis-
     7  tration  of  a  diagnostic  or  screening  test to a pregnant woman that
     8  detects for trisomy conditions; and
     9    (b) "Trisomy conditions" means trisomy 13, otherwise  known  as  Patau
    10  syndrome;  trisomy  18, otherwise known as Edwards syndrome; and trisomy
    11  21, otherwise known as Down syndrome.
    12    2. A health care practitioner who orders prenatal tests for a pregnant
    13  woman to screen for  trisomy  conditions  shall  provide  the  following
    14  information  to the pregnant woman if the test reveals a positive result
    15  for any of the trisomy conditions:
    16    (a) Up-to-date and evidence-based information about the trisomy condi-
    17  tions that has been reviewed by medical  experts  and  national  trisomy
    18  organizations.  The  information  must  be  provided  in a written or an
    19  alternative format and must include the following:
    20    i. expected physical,  developmental,  educational,  and  psychosocial
    21  outcomes;
    22    ii. life expectancy;
    23    iii. the clinical course description;
    24    iv. expected intellectual and functional development; and

         EXPLANATION--Matter in italics (underscored) is new; matter in brackets
                              [ ] is old law to be omitted.
                                                                   LBD06584-01-3
        A. 2221                             2

     1    v.  treatment  options available for the particular syndrome for which
     2  the test was positive.
     3    (b)  Contact  information  for  nonprofit  organizations  that provide
     4  information and support services for trisomy conditions.
     5    3. (a) The commissioner shall provide written  information  to  health
     6  care  practitioners  necessary  to  implement  subdivision  two  of this
     7  section.
     8    (b) Additionally, the commissioner shall post such information on  the
     9  department's website.
    10    (c)  The  commissioner  shall  follow  existing department practice to
    11  ensure that the information is culturally and linguistically appropriate
    12  for all recipients.
    13    (d) Any local or national  organization  that  provides  education  or
    14  services related to trisomy conditions, may request that the commission-
    15  er  include the organization's informational material and contact infor-
    16  mation on the department's website. Once a request is made, the  commis-
    17  sioner may add the information to the website.
    18    §  2.  This  act shall take effect on the ninetieth day after it shall
    19  have become a law. Effective immediately, the addition, amendment and/or
    20  repeal of any rule or regulation necessary  for  the  implementation  of
    21  this  act  on its effective date are authorized to be made and completed
    22  on or before such effective date.