S T A T E O F N E W Y O R K ________________________________________________________________________ 5538 2013-2014 Regular Sessions I N S E N A T E May 16, 2013 ___________ Introduced by Sen. HANNON -- read twice and ordered printed, and when printed to be committed to the Committee on Health AN ACT to amend the public health law, in relation to the adoption medical information registry THE PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM- BLY, DO ENACT AS FOLLOWS: 1 Section 1. Subdivision 6-a of section 4138-c of the public health law, 2 as amended by chapter 480 of the laws of 2012 and paragraphs (d) and (e) 3 as amended by chapter 15 of the laws of 2013, is amended to read as 4 follows: 5 6-a. (a) There shall be established in the registry an adoption 6 medical information sub-registry. Access to all identifying records and 7 information in the sub-registry shall be subject to the same 8 restrictions as the adoption information registry. 9 (b) The department shall establish procedures FOR ALL ADOPTIONS IN THE 10 STATE by which a birth parent [may] SHALL provide medical information to 11 the sub-registry, and by which an adoptee aged eighteen years or older 12 or the adoptive parents of an adoptee who has not attained the age of 13 eighteen years may access such medical information. 14 (c) [A] FOR ALL ADOPTIONS IN THE STATE, A birth parent [may] SHALL 15 provide the adoption medical information sub-registry with certified 16 medical information. Such certified medical information must include 17 other information sufficient to locate the adoptee's birth record. 18 (d) Upon receipt from the birth parent of certified medical informa- 19 tion and other information needed to identify the adopted person, the 20 department shall[, to the extent practicable, determine if] CONFIRM 21 WHETHER the adoptee was adopted in New York state. If the adoptee was 22 adopted in New York state, the department shall register such informa- 23 tion and determine if the adoptee or adoptive parent of the adoptee is 24 registered. Upon such determination, the department shall release the 25 non-identifying medical information only to an adoptee, aged eighteen EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets [ ] is old law to be omitted. LBD11149-01-3 S. 5538 2 1 years or older, or adoptive parent of an adoptee who has not attained 2 the age of eighteen years. 3 (e) Upon receipt from an adoptee aged eighteen years or older or the 4 parent of an adoptee of a registration, the department shall[, to the 5 extent practicable, determine if] CONFIRM WHETHER the adoptee was 6 adopted in New York state. If the adoptee was adopted in New York state, 7 the department shall search its records for medical information provided 8 by the adoptee's birth parent. [If such medical information is found, 9 the] THE department shall release the non-identifying medical informa- 10 tion only, to an adoptee, aged eighteen years or older, or adoptive 11 parent of an adoptee who has not attained the age of eighteen years. 12 (f) The department shall [not solicit or request the provision of 13 medical information from a birth parent or the registration by an adop- 14 tee or parent of an adoptee] ESTABLISH PROCEDURES TO ENSURE HEALTH 15 INFORMATION IS PERIODICALLY UPDATED. 16 (g) A fee shall not be required from a birth parent for providing 17 health information. 18 S 2. This act shall take effect on the same date and in the same 19 manner as chapter 480 of the laws of 2012 takes effect.