Bill Text: CA SR29 | 2015-2016 | Regular Session | Enrolled

California Senate Resolution 29 (Prior Session Legislation)

Bill Title: Relative to Cystic Fibrosis Awareness Month

Spectrum: Partisan Bill (Republican 1-0)

Status: (Passed) 2015-05-28 - Read. Adopted. (Ayes 38. Noes 0. Page 1118.) [SR29 Detail]

Download: California-2015-SR29-Enrolled.html

BILL NUMBER: SR 29	ENROLLED
	BILL TEXT

	ADOPTED IN SENATE  MAY 28, 2015
	ADOPTED IN ASSEMBLY  MAY 18, 2015

INTRODUCED BY   Senator Runner

                        MAY 18, 2015

   Relative to Cystic Fibrosis Awareness Month


	LEGISLATIVE COUNSEL'S DIGEST
             HOUSE OR SENATE RESOLUTIONS DO NOT CONTAIN A DIGEST



   WHEREAS, Cystic fibrosis is the second most common chronic,
progressive, and life-threatening genetic disease in the United
States, and one for which there is no known cure; and
   WHEREAS, Approximately 30,000 children and adults in the United
States have cystic fibrosis and more than 1,000 new cases are
diagnosed each year; and
   WHEREAS, During the 1950s, few children with cystic fibrosis lived
long enough to attend elementary school; and
   WHEREAS, Due to progress in understanding and treating the
disease, many people living with cystic fibrosis can now expect to
live into their 40s and beyond; and
   WHEREAS, One of every 3,500 babies born in the United States is
born with cystic fibrosis; and
   WHEREAS, The federal Centers for Disease Control and Prevention
estimates that more than 12 million Americans are unknowing,
symptomless carriers of the cystic fibrosis gene and have high odds
of passing the gene to their children; and
   WHEREAS, The federal Centers for Disease Control and Prevention
recommends that all states consider screening newborns for cystic
fibrosis; and
   WHEREAS, The Cystic Fibrosis Foundation urges all states to
implement newborn screening for cystic fibrosis to facilitate early
diagnosis and treatment that improves health and longevity; and
   WHEREAS, Prompt, aggressive treatment of the symptoms of cystic
fibrosis can extend the lives of people who have the disease; and
   WHEREAS, Recent advances in cystic fibrosis research have produced
promising leads in gene, protein, and drug therapies beneficial to
people who have the disease; and
   WHEREAS, Innovative research is progressing faster, and is being
conducted more aggressively, than ever before, due, in part, to the
Cystic Fibrosis Foundation's establishment of a model clinical trials
network; and
   WHEREAS, Although the Cystic Fibrosis Foundation continues to fund
a research pipeline for more than two dozen potential therapies and
funds a nationwide network of care centers that extend the length and
quality of life for people with cystic fibrosis, lives continue to
be lost to this disease every day; and
   WHEREAS, Education of the public about cystic fibrosis, including
the symptoms of the disease, increases knowledge and understanding of
cystic fibrosis and promotes early diagnosis; and
   WHEREAS, The Cystic Fibrosis Foundation will conduct activities to
honor National Cystic Fibrosis Awareness Month during May 2015; now,
therefore, be it
   Resolved by the Senate of the State of California, That the Senate
proclaims the month of May 2015 as Cystic Fibrosis Awareness Month;
and be it further
   Resolved, That the Senate honors the goals and ideals of Cystic
Fibrosis Awareness Month so as to promote further public awareness
and understanding of cystic fibrosis; and be it further
   Resolved, That the Senate encourages early diagnosis and access to
quality care for people with cystic fibrosis to improve the quality
of their lives, advocates for increased support for people who have
cystic fibrosis and their families, and supports research to find a
cure for cystic fibrosis; and be it further
   Resolved, That the Secretary of the Senate transmit copies of this
resolution to the author for appropriate distribution.