Bill Text: IA SF2270 | 2011-2012 | 84th General Assembly | Introduced
Bill Title: A bill for an act relating to the state comprehensive Alzheimer's disease response strategy. (Formerly SSB 3149.)
Spectrum: Committee Bill
Status: (Engrossed - Dead) 2012-03-07 - Subcommittee, Iverson, Abdul-Samad, and Anderson. H.J. 477. [SF2270 Detail]
Download: Iowa-2011-SF2270-Introduced.html
Senate
File
2270
-
Introduced
SENATE
FILE
2270
BY
COMMITTEE
ON
HUMAN
RESOURCES
(SUCCESSOR
TO
SSB
3149)
A
BILL
FOR
An
Act
relating
to
the
state
comprehensive
Alzheimer’s
disease
1
response
strategy.
2
BE
IT
ENACTED
BY
THE
GENERAL
ASSEMBLY
OF
THE
STATE
OF
IOWA:
3
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5674SV
(3)
84
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S.F.
2270
Section
1.
NEW
SECTION
.
135P.1
Definitions.
1
As
used
in
this
chapter,
unless
the
context
otherwise
2
requires:
3
1.
“Alzheimer’s
disease”
or
“Alzheimer’s”
means
a
4
progressive,
degenerative,
fatal
disorder
that
results
in
loss
5
of
memory,
loss
of
thinking
and
language
skills,
and
behavioral
6
changes.
“Alzheimer’s
disease”
includes
related
dementias
7
including
vascular
dementia,
Parkinson’s
disease,
dementia
with
8
Lewy
bodies,
frontotemporal
dementia,
Crutzfeldt-Jakob
disease,
9
normal
pressure
hydrocephalus,
and
mixed
dementia.
10
2.
“Department”
means
the
department
of
public
health.
11
Sec.
2.
NEW
SECTION
.
135P.2
Alzheimer’s
disease
——
12
state-level
coordination
and
comprehensive
response
strategy.
13
1.
The
department
of
public
health
shall
lead
the
effort
to
14
expand
the
state-level
infrastructure
necessary
to
prepare
for
15
long-term,
comprehensive
support
of
Alzheimer’s
disease-related
16
activities
in
the
state.
The
department
shall
develop
and
17
administer
a
comprehensive
Alzheimer’s
disease
response
18
strategy
and
act
as
the
coordination
hub
to
facilitate,
19
integrate,
and
monitor
interagency
planning
and
policymaking;
20
expand
public
and
private
partnerships
to
enhance
public
21
awareness
and
improve
access
to
quality
care;
and
identify
22
funding
opportunities
to
further
the
goals
of
this
chapter.
23
2.
The
department
shall
formulate
and
administer
a
24
multiyear
comprehensive
Alzheimer’s
disease
response
strategy
25
that
includes
short-term
and
long-term
objectives
and
26
action
steps.
Both
short-term
and
long-term
objectives
and
27
action
steps
should
focus
on
ensuring
that
individuals
with
28
Alzheimer’s
disease
have
access
to
the
highest
quality,
most
29
appropriate
care
at
all
stages
of
the
disease
and
in
all
30
settings
across
the
service
and
supports
continuum.
The
31
response
strategy
may
include
prioritization
of
objectives
and
32
action
steps
to
most
efficiently
utilize
resources
and
funding.
33
The
department
shall
update
the
initial
strategy
biennially
to
34
address
the
challenges
presented
with
increased
prevalence
of
35
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the
disease,
and
shall
submit
a
progress
report
annually
in
1
January
to
the
governor
and
the
general
assembly.
2
3.
In
developing
the
necessary
infrastructure
and
3
formulating
and
administering
the
comprehensive
Alzheimer’s
4
disease
response
strategy,
the
department
shall
do
all
of
the
5
following:
6
a.
Establish
a
dedicated
full-time
position
of
Alzheimer’s
7
disease
coordinator
within
the
department.
The
coordinator,
8
in
partnership
with
public
and
private
entities
and
the
9
multidisciplinary
advisory
council,
shall
to
do
all
of
the
10
following:
11
(1)
Based
upon
the
recommendations
of
Alzheimer’s
disease
12
workgroup
pursuant
to
2011
Iowa
Acts,
chapter
61,
initially
13
formulate
and
subsequently
update
the
comprehensive
Alzheimer’s
14
disease
response
strategy.
15
(2)
Broaden
awareness
of
the
impact
of
individuals
with
16
Alzheimer’s
disease,
and
coordinate
a
public
awareness
17
and
education
campaign
with
public
and
private
partners
to
18
demystify
and
encourage
public
understanding
and
acceptance
of
19
Alzheimer’s
disease,
promote
the
importance
of
early
detection
20
and
diagnosis,
promote
efforts
that
educate
physicians
21
and
other
health
professionals
in
best
practice
standards,
22
collaborate
in
the
dissemination
of
reliable
information,
and
23
promote
resource
and
referral
opportunities.
24
(3)
Lead
and
coordinate
data
collection
efforts
among
25
public
and
private
entities
to
provide
a
centralized
point
of
26
data
collection
and
serve
as
a
clearinghouse
of
information
27
regarding
Alzheimer’s
disease.
Data
collection
efforts
28
shall
focus
on
increasing
surveillance
of
the
prevalence
and
29
impact
of
Alzheimer’s
disease
in
the
state
and,
to
the
extent
30
possible,
utilize
and
enhance
existing
assessment
tools
to
31
promote
common
data
elements
and
uniform
collection
of
data.
32
Data
collection
should
specifically
include
informing
planning
33
for
individuals
with
younger
onset
Alzheimer’s
disease.
34
(4)
Coordinate
efforts
to
expand
access
to
quality
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services.
The
effort
shall
focus
on
promoting
a
system
of
care
1
that
provides
equitable
access
to
multiple,
individualized
2
services
and
supports
that
are
evidence-based,
coordinated,
3
interdisciplinary,
and
person-centered.
To
the
greatest
extent
4
possible
the
system
of
care
shall
utilize
a
social
rather
than
5
medical
model
by
incorporating
and
enhancing
existing
health
6
home
and
preventive
care
initiatives,
home
and
community-based
7
services
and
supports,
and
technologies
such
as
telemedicine
8
especially
in
rural
and
underserved
areas
of
the
state.
9
(5)
Address
workforce
challenges
specific
to
Alzheimer’s
10
disease
and
dementia
by
coordinating
with
existing
state
11
efforts
that
align
and
implement
curriculum
and
training
12
requirements
for
providers
who
interact
with
persons
with
13
Alzheimer’s
disease;
and
by
supporting
efforts
to
improve
14
recruitment
and
retention
of
targeted
professionals
with
15
dementia-specific
education
and
training
including
but
not
16
limited
to
psychiatrists,
gerontologists,
neurologists,
and
17
direct
care
professionals.
18
(6)
Act
as
a
liaison
to
the
aging
and
disability
resource
19
centers,
area
agencies
on
aging,
Alzheimer’s
association
20
chapters,
the
health
and
long-term
care
advisory
council
21
created
in
sections
135.163
and
135.164,
and
other
entities
to
22
ensure
Alzheimer’s
disease
is
appropriately
addressed
in
the
23
state.
24
(7)
Apply
for
public
and
private
funding
relating
to
25
dementia
to
fulfill
the
duties
specified
under
this
chapter.
26
b.
Convene
a
multidisciplinary
advisory
council.
The
27
council
shall
assist
and
advise
the
department
and
the
28
coordinator;
develop
partnerships
to
provide
coordination,
29
collaboration
and
support
for
Alzheimer’s-related
services
30
and
programs
throughout
the
state;
and
advocate
on
behalf
of
31
persons
with
Alzheimer’s
disease
and
their
families.
The
32
advisory
council
shall,
at
a
minimum,
include
representation
33
from
individuals
with
Alzheimer’s
disease
and
their
families;
34
caregivers
and
other
providers
of
services
and
supports;
35
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medical
providers
including
primary
and
specialty
care
1
providers
including
geriatricians,
neurologists,
and
others
2
with
expertise
in
Alzheimer’s
disease;
the
Alzheimer’s
3
association;
community-based
organizations
and
other
4
organizations
with
interest
or
expertise
in
Alzheimer’s
5
disease;
academic
institutions
and
programs
with
a
focus
6
on
Alzheimer’s
disease
and
dementia;
and
appropriate
state
7
agencies
including
but
not
limited
to
the
department
on
8
aging,
the
department
of
human
services,
the
department
of
9
inspections
and
appeals,
the
department
of
public
safety,
and
10
the
department
of
workforce
development.
The
department
shall
11
enlist
private
entities
in
providing
staff
support
for
the
12
council.
13
Sec.
3.
REPEAL.
Sections
135.171
and
231.62,
Code
and
Code
14
Supplement
2011,
are
repealed.
15
Sec.
4.
INCORPORATION
OF
EXISTING
STATE
DUTIES.
The
16
department
of
public
health
shall
incorporate
the
requirements
17
specified
in
sections
135.171
and
231.62,
Code
and
Code
18
Supplement
2011,
into
the
comprehensive
Alzheimer’s
disease
19
strategy
formulated
and
administered
pursuant
to
this
Act.
20
EXPLANATION
21
This
bill
relates
to
state-level
coordination
of
and
a
22
comprehensive
response
strategy
for
Alzheimer’s
disease.
The
23
bill
creates
a
new
Code
chapter,
Code
chapter
135P,
to
direct
24
that
the
department
of
public
health
(DPH)
is
to
lead
the
25
effort
to
expand
the
state-level
infrastructure
and
develop
26
and
administer
a
comprehensive
Alzheimer’s
disease
response
27
strategy.
The
bill
provides
a
definition
of
Alzheimer’s
28
disease
which
includes
related
dementias.
29
The
bill
directs
DPH
to
formulate
and
administer
a
multiyear
30
comprehensive
Alzheimer’s
disease
response
strategy,
to
update
31
the
strategy
biennially,
and
to
submit
a
progress
report
32
annually
in
January
to
the
governor
and
the
general
assembly.
33
The
response
strategy
may
include
prioritization
of
objectives
34
and
action
steps
to
most
efficiently
utilize
resources
and
35
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LSB
5674SV
(3)
84
pf/nh
4/
6
S.F.
2270
funding.
1
In
developing
the
necessary
infrastructure
and
formulating
2
and
administering
the
comprehensive
Alzheimer’s
disease
3
response
strategy,
DPH
is
directed
to
establish
a
dedicated
4
full-time
position
of
Alzheimer’s
disease
coordinator
within
5
the
department
and
to
convene
a
multidisciplinary
advisory
6
council.
7
The
coordinator,
in
partnership
with
public
and
private
8
entities
and
the
multidisciplinary
advisory
council
created
in
9
the
bill,
is
to
initially
formulate
and
subsequently
update
the
10
comprehensive
Alzheimer’s
disease
response
strategy;
broaden
11
awareness
of
the
impact
of
Alzheimer’s
disease,
and
coordinate
12
a
public
awareness
and
education
campaign
with
public
and
13
private
partners;
lead
and
coordinate
data
collection
efforts
14
among
public
and
private
entities
to
provide
a
centralized
15
point
of
data
collection
and
serve
as
a
clearinghouse
of
16
information
regarding
Alzheimer’s
disease;
coordinate
efforts
17
to
expand
access
to
quality
services;
address
workforce
18
challenges
specific
to
Alzheimer’s
disease
and
dementia;
act
as
19
a
liaison
to
public
and
private
entities
to
ensure
Alzheimer’s
20
disease
is
appropriately
addressed
in
the
state;
and
apply
for
21
public
and
private
funding
relating
to
dementia
to
fulfill
the
22
duties
specified
under
the
bill.
23
The
multidisciplinary
advisory
council
is
to
assist
and
24
advise
the
department
and
the
coordinator;
develop
partnerships
25
related
to
Alzheimer’s-related
services
and
programs
throughout
26
the
state;
and
advocate
on
behalf
of
persons
with
Alzheimer’s
27
disease
and
their
families.
The
bill
specifies
the
minimum
28
representation
to
be
included
in
the
advisory
council,
and
29
directs
DPH
to
enlist
private
entities
in
providing
staff
30
support
for
the
council.
31
The
bill
repeals
the
Code
section
relating
to
a
directive
32
to
DPH
to
analyze
Iowa’s
population
to
determine
the
existing
33
service
utilization
and
future
service
needs
of
persons
with
34
Alzheimer’s
disease
and
similar
forms
of
irreversible
dementia
35
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2270
(Code
section
135.171).
The
bill
also
repeals
the
Code
1
section
relating
to
a
directive
to
the
department
on
aging
to
2
review
trends
and
initiatives
to
address
the
long-term
living
3
needs
of
Iowans
with
Alzheimer’s
disease
and
similar
forms
4
of
irreversible
dementia,
and
to
expand
and
improve
training
5
and
education
of
persons
who
regularly
deal
with
persons
with
6
Alzheimer’s
disease
and
similar
forms
of
irreversible
dementia
7
(Code
section
231.62).
DPH
is
required
to
incorporate
both
of
8
these
directives
into
the
comprehensive
Alzheimer’s
disease
9
response
strategy
formulated
and
administered
under
the
bill.
10
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