Bill Amendment: IL SB1803 | 2023-2024 | 103rd General Assembly

NOTE: For additional amemendments please see the Bill Drafting List

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Bill Title: LYME DISEASE INNOVATION PROG

Status: 2023-08-11 - Public Act . . . . . . . . . 103-0557 [SB1803 Detail]

Download: Illinois-2023-SB1803-Senate_Amendment_001.html

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Sen. Laura M. Murphy

Filed: 3/24/2023

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AMENDMENT TO SENATE BILL 1803
AMENDMENT NO. ______. Amend Senate Bill 1803 by replacing
everything after the enacting clause with the following:
"Section 5. The Department of Natural Resources
(Conservation) Law of the Civil Administrative Code of
Illinois is amended by adding Section 805-72 as follows:
(20 ILCS 805/805-72 new)
Sec. 805-72. Lyme Disease Innovation Program.
(a) The Department shall consult with the Department of
Agriculture, the Department of Public Health, and members of
the University of Illinois' INHS Medical Entomology Program to
establish the Lyme Disease Innovation Program no later than
one year after the effective date of this amendatory Act of the
103rd General Assembly. The Department shall contract with an
Illinois not-for-profit organization whose purpose is to raise
awareness of tick-borne diseases with the public and the

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medical community to operate the Program. The Program's
purpose is to raise awareness with the public and to assist
persons at risk of Lyme disease and other tick-borne diseases
with education and awareness materials and campaigns while
developing evidence-based approaches that are cost-effective.
(b) The Program shall implement a statewide interagency
and multipronged approach to combat Lyme disease and other
tick-borne diseases in Illinois, including adopting an
evidence-based model that recognizes the key roles that
patients, advocates, and not-for-profit organizations have in
fighting Lyme disease and tick-borne diseases. The Program's
objectives include issuing grants, subject to the approval of
the Department, to State agencies and Illinois not-for profit
organizations from moneys in the Lyme Disease Awareness Fund
and other appropriations for the following purposes:
(1) Bringing awareness of Lyme disease and tick-borne
diseases by any one or more of the following methods:
(A) creating innovative ideas and collaborations
for raising awareness about risks and prevention;
(B) amplifying and improving access to essential
information supporting innovations in prevention,
education, and care with open data and science;
(C) fostering the development of new,
community-based education and prevention efforts; and
(D) using programs, website advertising,
pamphlets, or other methods to increase the awareness

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of Lyme disease and tick-borne diseases;
(2) Engaging stakeholders to facilitate
patient-centered innovations by (i) building trust among
stakeholders through listening sessions, roundtables, and
other learning approaches that ground innovations in lived
experience, (ii) engaging stakeholders in identifying
current areas of need to promote targeted innovations that
will make real-world improvements in quality of care, and
(iii) gaining insight into patient needs and priorities
through stakeholders' collective wisdom and applying that
wisdom in shaping future innovation challenges and events.
(3) Advancing stakeholder driven interdisciplinary and
interagency collaborations by providing resources to
not-for-profit organizations whose purpose is to raise
awareness of tick-borne diseases with the public and the
medical community in order to (i) facilitate the
stakeholder engagement and collaborations and
patient-centered innovations and support groups, (ii)
identify ways to better collect and share data while
raising awareness of tick-borne illnesses, and (iii)
assist with the development of outreach and education
materials and approaches for State agencies.
(4) The University of Illinois' INHS Medical
Entomology Program maintaining a passive tick and
tick-borne pathogen surveillance program, based on ticks
contributed by the Illinois public, and including tick

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identifications and disease-agent testing of a subset of
identified ticks; compiling evidence and conducting
research on tick bite prevention and risk of tick and
tick-borne pathogen exposure; and providing evidence,
results, and analysis and insight from both the passive
surveillance program, on tick species and tick-borne
disease-agent distributions and diversity in the State,
and its related research on tick bite exposure and
prevention, to support the Lyme Disease Innovation Program
objectives.
(c) The Program shall be funded through moneys deposited
into the Lyme Disease Awareness Fund and other appropriations.
The not-for-profit organization contracted with to operate the
Program shall be paid, subject to the approval of the
Department, for its operation of the Program from moneys
deposited into the Fund or from other appropriations.
The University of Illinois' Prairie Research Institute
shall be paid, subject to the approval of the Department, for
the INHS Medical Entomology Program's operation of a passive
tick surveillance and research program from moneys deposited
into the Fund or from other appropriations.
(d) The Department must adopt rules to implement this
Section.
Section 90. The State Finance Act is amended by adding
Section 5.990 as follows:

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(30 ILCS 105/5.990 new)
Sec. 5.990. The Lyme Disease Awareness Fund.
Section 99. Effective date. This Act takes effect upon
becoming law.".