Bill Text: IL HR0636 | 2023-2024 | 103rd General Assembly | Introduced

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Bill Title: Declares September 7, 2024 as Duchenne Muscular Dystrophy Awareness Day in the State of Illinois.

Spectrum: Partisan Bill (Democrat 3-0)

Status: (Passed) 2024-05-24 - Resolution Adopted [HR0636 Detail]

Download: Illinois-2023-HR0636-Introduced.html

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HR0636 LRB103 39786 LAW 70352 r
HOUSE RESOLUTION
WHEREAS, Duchenne muscular dystrophy affects approximately
one out of every 5,000 live male births; and
WHEREAS, Globally, 20,000 children are diagnosed with
Duchenne muscular dystrophy each year; and
WHEREAS, There are an estimated 15,000 people in the U.S.
living with Duchenne muscular dystrophy; and
WHEREAS, With increased funding for research and rapidly
improving treatments, people with Duchenne muscular dystrophy
have more hope than before; however, there is currently no
cure for Duchenne muscular dystrophy; and
WHEREAS, Earlier diagnosis of Duchenne muscular dystrophy
in children could improve health outcomes for those affected;
and
WHEREAS, Symptoms of Duchenne muscular dystrophy include
progressive loss of strength and function in the hips, thighs,
shoulders, pelvis, arms, lower legs, and trunk; later in life,
strength in the muscles of the heart and lungs, heart
function, and breathing are also affected; and

HR0636 - 2 - LRB103 39786 LAW 70352 r
WHEREAS, Newborn screening will improve health outcomes
for children with Duchenne muscular dystrophy; therefore, be
it
RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE
HUNDRED THIRD GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that
we declare September 7, 2024 as Duchenne Muscular Dystrophy
Awareness Day in the State of Illinois; and be it further