Bill Text: MI HR0286 | 2009-2010 | 95th Legislature | Introduced
Bill Title: A resolution to declare June 12, 2010, as Tuberous Sclerosis Awareness Day in the state of Michigan.
Spectrum: Slight Partisan Bill (Republican 14-7)
Status: (Passed) 2010-05-19 - Adopted [HR0286 Detail]
Download: Michigan-2009-HR0286-Introduced.html
Reps. Bolger, Ball, Lisa Brown, Crawford, Denby, Geiss, Hansen, Hildenbrand, Robert Jones, Knollenberg, Liss, Marleau, Neumann, Pearce, Proos, Rogers, Schuitmaker, Sheltrown, Stamas, Tyler and Valentine offered the following resolution:
House Resolution No. 286.
A resolution to declare June 12, 2010, as Tuberous Sclerosis Awareness Day in the state of Michigan.
Whereas, It is important to increase awareness of Tuberous Sclerosis Complex (TSC) and support programs to increase research and improve treatment of Tuberous Sclerosis. It is also vital to improve training and support for individuals with Tuberous Sclerosis and those who care for individuals with Tuberous Sclerosis; and
Whereas, The Tuberous Sclerosis Alliance is the only national voluntary health organization dedicated to finding a cure for TSC and improving the lives of those affected through research, support, and education; and
Whereas, TSC affects an estimated 1 in very 6,000 live births in America; and
Whereas, TSC affects some people severely, while others are so mildly affected that it often goes undiagnosed; and
Whereas, People with TSC often develop epilepsy and autism. In fact, TSC is one of the leading known genetic causes of epilepsy and autism. Many other individuals encounter behavioral and learning problems. Despite this, many professionals in the medical and educational fields are still unaware of the best methods to diagnose and treat TSC; and
Whereas, The Tuberous Sclerosis Alliance of Michigan is hosting an opportunity to create awareness of Tuberous Sclerosis and raise funds for research programs and services titled “Step Forward to Cure Tuberous Sclerosis” on June 12, 2010; now, therefore, be it
Resolved by the House of Representatives, That the members of this legislative body declare June 12, 2010, as Tuberous Sclerosis Awareness Day in the state of Michigan. We recognize and commend the families and individuals affected by TSC for their sacrifice and dedication in dealing with this devastating condition. We commend them for providing the special needs of both children and adults with TSC and for absorbing significant financial costs for treatment and support services; and be it further
Resolved, That we stress the need to begin early intervention services soon after a child has been diagnosed with TSC. Early intervention strategies are the primary therapeutic options for young people with TSC, and early intervention significantly improves outcomes for people with TSC. Early intervention can reduce the level of funding and services needed later in life.
