Bill Text: NY K00315 | 2021-2022 | General Assembly | Introduced

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Bill Title: Memorializing Governor Andrew M. Cuomo to proclaim May 2021, as Cystic Fibrosis Awareness Month in the State of New York

Spectrum: Bipartisan Bill

Status: (Passed) 2021-05-20 - adopted [K00315 Detail]

Download: New_York-2021-K00315-Introduced.html

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Assembly Resolution No. 315

BY: M. of A. Jones

        MEMORIALIZING Governor Andrew M. Cuomo to proclaim
        May  2021, as Cystic Fibrosis Awareness Month in the
        State of New York

  WHEREAS, It is the custom of  this  Legislative  Body  to  recognize
official  months  that  are  set  aside to increase awareness of serious
illnesses that affect the lives of citizens of New York State; and

  WHEREAS, Attendant to such concern, and  in  full  accord  with  its
long-standing  traditions,  this  Legislative  Body  is  justly proud to
memorialize Governor Andrew M. Cuomo to proclaim  May  2021,  as  Cystic
Fibrosis Awareness Month in the State of New York; and

  WHEREAS, The Cystic Fibrosis Foundation, a donor-supported nonprofit
organization,  is the world's leader in the search for a cure for cystic
fibrosis, having raised and invested hundreds of millions of dollars  to
help develop drugs and therapies; and

  WHEREAS,  The  Cystic  Fibrosis Foundation is working to cure cystic
fibrosis and to provide all  people  struggling  with  the  disease  the
opportunity to lead full, productive lives; and

  WHEREAS, Cystic fibrosis, commonly referred to as "CF", is a genetic
disease affecting approximately 31,000 children and adults in the United
States  and  nearly  70,000 children and adults worldwide, 1,644 of whom
live in New York; and

  WHEREAS, A defective gene causes the body to produce  an  abnormally
thick,  sticky  mucus that clogs the lungs, and these secretions produce
life-threatening lung infections and obstruct the  pancreas,  preventing
digestive  enzymes  from  reaching the intestines to help break down and
absorb food; and

  WHEREAS, More than 10 million Americans are symptomless carriers  of
the defective CF gene; and

  WHEREAS,  The median predicted age of survival for a person with CF,
born in 2019, is 48.4 years; and

  WHEREAS, With advances in the treatment of CF, the number of  adults
with  CF  has  steadily grown, and approximately 900 new cases of CF are
diagnosed each year; and

  WHEREAS, 56% of the CF population is 18 years of age and older,  and
people  with  CF  have a variety of symptoms attributed to the more than
2,000 mutations of the CF gene; and

  WHEREAS, Infant blood screening to detect  genetic  defects  is  the
most reliable and least costly method to identify persons likely to have
CF; and

  WHEREAS,  Early diagnosis of CF permits early treatment and enhances
quality of life and longevity and the treatment of  CF  depends  on  the
stage of the disease and the organs involved; and

  WHEREAS,  Clearing  mucus from the lungs is an important part of the
daily CF treatment  regimen,  and  other  types  of  treatments  include
inhaled antibiotics and pancreatic enzymes, among others; and

  WHEREAS,  There  are  21  world-class  treatment centers in New York
which specialize in the diagnosis of CF and the care of persons with CF;
and

  WHEREAS, A critical component of treating patients with CF  includes
access  to  innovative  treatments, which can play a crucial role in the
lives of patients with CF; and

  WHEREAS, It is imperative that there be greater public awareness  of
this  serious disease, and more must be done to increase activity at the
local, State and national levels; now, therefore, be it

  RESOLVED, That this Legislative Body pause in its  deliberations  to
memorialize  Governor  Andrew  M.  Cuomo to proclaim May 2021, as Cystic
Fibrosis Awareness Month in the State of New York; and be it further

  RESOLVED, That a copy of this  Resolution,  suitably  engrossed,  be
transmitted  to  The Honorable Andrew M. Cuomo, Governor of the State of
New York.