Bill Text: SC S1167 | 2023-2024 | 125th General Assembly | Draft
Bill Title: Batten Disease Awareness Day
Spectrum: Partisan Bill (Republican 1-0)
Status: (Passed) 2024-03-21 - Scrivener's error corrected [S1167 Detail]
Download: South_Carolina-2023-S1167-Draft.html
South Carolina General Assembly
125th Session, 2023-2024
(Text matches printed bills. Document has been reformatted to meet World Wide Web specifications.)
A concurrent RESOLUTION
TO RECOGNIZE April 3, 2024, AS "batten disease awareness day" IN SOUTH CAROLINA.
Whereas, Batten disease is an extremely rare genetic disorder that impacts the brain and nervous system. It appears in one of every one hundred thousand babies born worldwide; and
Whereas, symptoms for Batten disease include progressive vision loss leading to blindness, seizures, cognitive decline and dementia, problems with movement, personality and behavior changes, and shortened lifespan; and
Whereas, Batten disease is diagnosed through genetic testing. There is no known cure; and
Whereas, the South Carolina 2024 spokesperson for Batten disease is Jack Timmerman, a second grader at Lake Murray Elementary School. Jack is the son of Ned and Jaime Timmerman and was diagnosed with Batten disease in August 2023; and
Whereas, despite the adversity he and his family have faced, Jack's spirit has not diminished. His love and kindness extend to all that meet him; and
Whereas, Jack Timmerman celebrates his eighth birthday on April 3, 2024. It would only be fitting and proper to name a day in South Carolina in honor of Jack and in recognition of the adversity that he bravely faces each day. Now, therefore,
Be it resolved by the Senate, the House of Representatives concurring:
That the members of the South Carolina General Assembly, by this resolution, recognize April 3, 2024 as "Batten Disease Awareness Day" in South Carolina.
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This web page was last updated on March 21, 2024 at 12:58 PM
