Bill Text: TX SR488 | 2023-2024 | 88th Legislature | Enrolled
Bill Title: Recognizing AADC (Aromatic L-Amino Acid Decarboxylase) Deficiency Awareness Day.
Spectrum: Partisan Bill (Democrat 1-0)
Status: (Passed) 2023-04-27 - Reported enrolled [SR488 Detail]
Download: Texas-2023-SR488-Enrolled.html
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WHEREAS, Aromatic L-Amino Acid Decarboxylase (AADC) | ||
Deficiency Awareness Day is being observed to focus attention on | ||
this rare disease and to help educate the community, physicians, | ||
and specialists about its symptoms to facilitate early | ||
detection; and | ||
WHEREAS, AADC Deficiency is a rare genetic neurological | ||
disease, and there have been approximately 200 cases of AADC | ||
Deficiency reported worldwide; and | ||
WHEREAS, AADC Deficiency is a life-limiting, severely | ||
debilitating condition that significantly impacts a patient's | ||
development, motor skills, growth, cognition, and language | ||
skills; and | ||
WHEREAS, The disease results from an inherited genetic | ||
mutation that causes patients to lack the AADC enzyme that is | ||
required to create dopamine; without dopamine, patients can | ||
never achieve motor milestones like holding their heads up, | ||
sitting, and standing and are unable to develop the ability to | ||
communicate or to meet the most basic of life's needs; and | ||
WHEREAS, Patients with AADC Deficiency often have low | ||
muscle tone that is unexplained and does not improve; such | ||
patients also suffer from involuntary eye movements and | ||
developmental delays; AADC Deficiency is often mistaken for | ||
other diseases like cerebral palsy, epilepsy, or autism; and | ||
WHEREAS, Patients are diagnosed with AADC Deficiency | ||
through genetic and other biochemical tests; and | ||
WHEREAS, AADC Deficiency Awareness Day serves as a vital | ||
means of helping inform the public and the medical community | ||
about the condition, and this awareness can help patients who may | ||
be experiencing the symptoms of AADC to receive appropriate | ||
treatment; now, therefore, be it | ||
RESOLVED, That the Senate of the State of Texas, 88th | ||
Legislature, hereby recognize AADC Deficiency Awareness Day and | ||
encourage Texans to learn more about the disease. | ||
Johnson | ||
________________________________ | ||
President of the Senate | ||
I hereby certify that the | ||
above Resolution was adopted by | ||
the Senate on April 27, 2023. | ||
________________________________ | ||
Secretary of the Senate | ||
________________________________ | ||
Member, Texas Senate |