Bill Text: CA ACR69 | 2023-2024 | Regular Session | Introduced

California Assembly Concurrent Resolution 69

NOTE: There are more recent revisions of this legislation. Read Latest Draft

Bill Title: Necrotizing Enterocolitis Awareness Day.

Spectrum: Slight Partisan Bill (Democrat 48-16)

Status: (Passed) 2023-06-09 - Chaptered by Secretary of State - Res. Chapter 93, Statutes of 2023. [ACR69 Detail]

Download: California-2023-ACR69-Introduced.html

CALIFORNIA LEGISLATURE— 2023–2024 REGULAR SESSION

Assembly Concurrent Resolution

No. 69

Introduced by Assembly Member Aguiar-Curry

May 01, 2023

Relative to Necrotizing Enterocolitis Awareness Day.

LEGISLATIVE COUNSEL'S DIGEST

ACR 69, as introduced, Aguiar-Curry. Necrotizing Enterocolitis Awareness Day.

This measure would declare May 17, 2023, as Necrotizing Enterocolitis Awareness Day.

Fiscal Committee: NO

WHEREAS, Necrotizing enterocolitis (NEC) is the most common cause of death in hospitalized premature infants after two weeks of age; and

WHEREAS, Babies born prematurely or with a medical complication, like congenital heart disease, are most at risk of NEC; and

WHEREAS, Thousands of babies develop NEC each year and hundreds of babies die from this complex intestinal condition; and

WHEREAS, Necrotizing enterocolitis causes a severe inflammatory process that can lead to intestinal tissue damage and death and, once NEC is diagnosed, many babies only live for a few hours or days; and

WHEREAS, Surgery for NEC is not curative, and the babies who survive often have lifelong neurological and nutritional complications; and

WHEREAS, Necrotizing enterocolitis results in approximately $5,000,000,000 of hospitalization expenses per year and roughly 19 percent of neonatal health care expenditures in the United States, with an estimated cost of $200,000 or more for each case of surgical necrotizing enterocolitis; and

WHEREAS, Breast milk is one of the most effective ways to help prevent necrotizing enterocolitis in medically fragile infants, and when the mother’s milk is unavailable, pasteurized donor human milk is the next-safest option for babies at risk of NEC; and

WHEREAS, Formula does not protect against the risk of NEC in medically fragile infants and infants at risk of NEC receive the most protection from their mother’s own milk and pasteurized donor milk; and

WHEREAS, Although the risk of necrotizing enterocolitis cannot be fully eliminated and there are not yet sure ways to stop or cure NEC, preventative measures are effective at reducing risks; and

WHEREAS, Parents must be trusted and valued as the most important member of their baby’s care team and health care providers should partner with families to provide the best care for infants at risk of NEC; and

WHEREAS, Necrotizing enterocolitis can develop in both premature babies and babies born at term and more data is desperately needed to better understand how and why NEC occurs in preterm and term infants; and

WHEREAS, Disparities and variation in care lead to Black infants being disproportionately affected by, and dying from, necrotizing enterocolitis compared to White infants; and

WHEREAS, The NEC Society is a 501(c)(3) nonprofit organization founded and led by a bereaved mother from California whose son died from complications of NEC and the NEC Society is the world’s leading charity working to accelerate NEC research, education, and advocacy; and

WHEREAS, To build a world without necrotizing enterocolitis and improve outcomes for infants and families, we must bring Californians together to raise awareness about this devastating neonatal disease; now, therefore, be it

Resolved by the Assembly of the State of California, the Senate thereof concurring, That the Legislature recognizes the importance of raising awareness about necrotizing enterocolitis; and be it further

Resolved, That the Legislature hereby proclaims May 17, 2023, as Necrotizing Enterocolitis Awareness Day in California; and be it further

Resolved, That the Chief Clerk of the Assembly transmit copies of this resolution to the author for appropriate distribution.