Bill Text: CA SCR106 | 2023-2024 | Regular Session | Enrolled

NOTE: There are more recent revisions of this legislation. Read Latest Draft

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Bill Title: GM1 Gangliosidosis Awareness Day.

Spectrum: Moderate Partisan Bill (Democrat 64-14)

Status: (Passed) 2024-04-11 - Chaptered by Secretary of State. Res. Chapter 34, Statutes of 2024. [SCR106 Detail]

Download: California-2023-SCR106-Enrolled.html

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Enrolled  April 09, 2024

Passed  IN  Senate  February 29, 2024

Passed  IN  Assembly  April 04, 2024

CALIFORNIA LEGISLATURE— 2023–2024 REGULAR SESSION

Senate Concurrent Resolution

No. 106

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Introduced by Senator Padilla
(Coauthors: Senators Allen, Dodd, Hurtado, Jones, Limón, Seyarto, and Skinner)
(Coauthors: Assembly Members Addis, Aguiar-Curry, Alanis, Alvarez, Arambula, Bains, Bauer-Kahan, Bennett, Berman, Boerner, Bryan, Calderon, Juan Carrillo, Wendy Carrillo, Connolly, Davies, Essayli, Flora, Mike Fong, Friedman, Gabriel, Gallagher, Garcia, Gipson, Grayson, Haney, Hart, Holden, Irwin, Jackson, Jones-Sawyer, Kalra, Lackey, Low, Lowenthal, Maienschein, McCarty, McKinnor, Muratsuchi, Ortega, Pacheco, Papan, Jim Patterson, Joe Patterson, Pellerin, Petrie-Norris, Quirk-Silva, Ramos, Rendon, Reyes, Luz Rivas, Robert Rivas, Rodriguez, Blanca Rubio, Sanchez, Santiago, Schiavo, Soria, Ta, Ting, Valencia, Villapudua, Waldron, Wallis, Ward, Weber, Wicks, Wilson, Wood, and Zbur)

February 05, 2024

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Relative to GM1 Gangliosidosis Awareness Day.

LEGISLATIVE COUNSEL'S DIGEST

SCR 106, Padilla. GM1 Gangliosidosis Awareness Day.

This measure would declare May 23, 2024, as GM1 Gangliosidosis Awareness Day in California.

Digest Key

Fiscal Committee: NO  

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Bill Text

WHEREAS, GM1 Gangliosidosis is a rare inherited disease that results in neurodegeneration and a progressive loss of abilities until death, leaving children, adolescents, and adults impaired with significant physical and developmental disabilities; and

WHEREAS, GM1 Gangliosidosis is severely underdiagnosed and misdiagnosed and occurs in only one in every 100,000 to 200,000 live births; and

WHEREAS, Lack of public awareness and visibility of GM1 Gangliosidosis contributes to underdiagnosis and difficulties in accessing specialized services and proper rehabilitation and support; and

WHEREAS, Early diagnosis of GM1 Gangliosidosis is important to ensure timely management of clinical complications, genetic counseling, and, when available, treatment and therapeutic remedies; and

WHEREAS, The goal is to raise awareness and increase the accurate and timely diagnosis of this rare inherited lysosomal disorder known as GM1 Gangliosidosis; now, therefore, be it

Resolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature declares May 23, 2024, as GM1 Gangliosidosis Awareness Day in California; and be it further

Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.