HI HB910 | 2025 | Regular Session

Status

Spectrum: Bipartisan Bill
Status: Introduced on January 23 2025 - 25% progression
Action: 2025-01-23 - Referred to HLT/EDN, CPC, FIN, referral sheet 3
Pending: House Health Committee
Text: Latest bill text (Introduced) [HTML]

Summary

Establishes the rare disease advisory council to increase awareness and effective medical intervention for rare diseases. Establishes the rare disease advisory council special fund. Requires DOH and DOE to incorporate the importance of annual physical examinations for children in programs and literature. Amends the insurance code to include coverage for individuals with velocardiofacial syndrome and other genetic disorders. Exempts from cost sharing. Appropriates funds.

Tracking Information

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Title

Relating To Rare Diseases.

Sponsors


History

DateChamberAction
2025-01-23HouseReferred to HLT/EDN, CPC, FIN, referral sheet 3
2025-01-23HouseIntroduced and Pass First Reading.
2025-01-21HousePending introduction.

Subjects


Hawaii State Sources


Bill Comments

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