Bill Text: IL HB0823 | 2019-2020 | 101st General Assembly | Introduced

NOTE: There are more recent revisions of this legislation. Read Latest Draft

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Bill Title: Creates the Sickle Cell Prevention, Care, and Treatment Program Act. Requires the Department of Healthcare and Family Services to establish a grant program for the purpose of providing for the prevention, care, and treatment of sickle cell disease and for educational programs concerning the disease. Requires the Department to: (1) develop application criteria and standards of eligibility for groups or organizations that apply for funds under the program; and (2) make available grants to groups and organizations who meet the eligibility standards set by the Department. Provides that the highest priority for grants shall be accorded to established sickle cell disease community-based organizations, and priority shall be given to ensuring the establishment of sickle cell disease centers in underserved areas that have a higher population of sickle cell disease patients. Requires the Department to determine the maximum amount available for each grant; determine policies for the expiration and renewal of grants; require that all grant funds be used for the purpose of prevention, care, and treatment of sickle cell disease or for educational programs concerning the disease; and develop a sickle cell disease educational outreach program that includes the dissemination of educational materials to specified persons and institutions. Permits the Department to contract with an entity to implement the sickle cell disease educational outreach program. Requires the Department to adopt rules. Requires the Department to conduct a study to determine the prevalence, impact, and needs of individuals with sickle cell disease and the sickle cell trait in Illinois. Provides that implementation of the Act is subject to appropriation. Amends the State Finance Act. Creates the Sickle Cell Chronic Disease Fund.

Spectrum: Partisan Bill (Democrat 20-0)

Status: (Engrossed - Dead) 2020-06-24 - Pursuant to Senate Rule 3-9(b) / Referred to Assignments [HB0823 Detail]

Download: Illinois-2019-HB0823-Introduced.html

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101ST GENERAL ASSEMBLY State of Illinois 2019 and 2020 HB0823 Introduced , by Rep. Kathleen Willis SYNOPSIS AS INTRODUCED:
20 ILCS 2310/2310-218 new
Amends the Department of Public Health Powers and Duties Law of the Civil Administrative Code of Illinois. Requires the Department of Public Health to ensure that those who draw blood from children and adults with intellectual and developmental disabilities are trained, at least once every 3 years, in the most current method of drawing blood from children and adults with developmental and intellectual disabilities. Provides that the training shall focus on drawing blood in a safe manner that is as comfortable as possible. Requires the Department to ensure that those facilities and providers review their training program at least once within each 3-year period to ensure that the training includes the most current methods available of drawing blood from children and adults with intellectual and developmental disabilities that is safe and comfortable for them and their families. Requires the Department to ensure that by July 1, 2020 all medical facilities are equipped to draw blood from children and adults with intellectual and developmental disabilities using finger-prick equipment, hemoglobin testing equipment, and all other related equipment that can be adapted to serve patients with intellectual and developmental disabilities.
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FISCAL NOTE ACT MAY APPLY
A BILL FOR
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AN ACT concerning health.
Be it enacted by the People of the State of Illinois,
represented in the General Assembly:
Section 5. The Department of Public Health Powers and
Duties Law of the Civil Administrative Code of Illinois is
amended by adding Section 2310-218 as follows:
(20 ILCS 2310/2310-218 new)
Sec. 2310-218. Phlebotomy on children and adults with
intellectual and developmental disabilities.
(a) As used in this Section, "phlebotomist" means a person
who draws blood for diagnostic testing, transfusions,
research, or blood donations.
(b) The Department shall ensure that all phlebotomists are
trained in the most current methods of drawing blood from
children and adults with intellectual and developmental
disabilities. The training shall focus on drawing blood in a
safe manner that is as comfortable as possible for the
individual from whom blood is drawn and for the families,
guardians, caretakers, or companions of the individual
accompanying him or her while blood is drawn. Such training
shall occur at least every 3 years.
(c) The Department shall ensure that all persons and
entities that perform the training described in subsection (b)

HB0823 - 2 - LRB101 04579 CPF 49587 b
review their training program not less than once every 3 years
to determine how their program conforms to the best available
practices used to safely draw blood from children and adults
with intellectual and developmental disabilities in a manner
that is as comfortable as possible for the individual from whom
blood is drawn and for the families, guardians, caretakers, or
companions of the individual accompanying him or her while
blood is drawn.
(d) The Department shall ensure that all licensed medical
facilities, including, but not limited to, hospitals,
pediatric care facilities, and adult care facilities, are, at a
minimum, equipped to draw blood from children and adults with
intellectual and developmental disabilities using finger-prick
equipment, hemoglobin testing equipment, and all other related
equipment that can be adapted to serve patients with
intellectual and developmental disabilities. The Department
shall ensure that all licensed medical facilities comply with
this subsection by July 1, 2020.