Bill Text: IL SB3092 | 2019-2020 | 101st General Assembly | Introduced

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Bill Title: Amends the Genetic Information Privacy Act. Provides that it is unlawful for any person or business to disclose an individual's genetic information to third parties specifically for marketing, advertising, or sales purposes unless the individual, or his or her legal guardian or legally authorized representative, consents in writing to the disclosure. Provides that any request for consent to disclose an individual's genetic information to third parties for marketing, advertising, or sales purposes must be provided in a written notice separate from any other communication that clearly and conspicuously states how the information will be disclosed, including to whom the information will be disclosed and how the information will be used by the recipient, seeks the individual's, or his or her legal guardian's or legally authorized representative's, consent to disclosure, and informs the individual, or his or her legal guardian or legally authorized representative, of how to cancel consent to disclosure once given.

Spectrum: Partisan Bill (Republican 1-0)

Status: (Failed) 2021-01-13 - Session Sine Die [SB3092 Detail]

Download: Illinois-2019-SB3092-Introduced.html

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101ST GENERAL ASSEMBLY State of Illinois 2019 and 2020 SB3092 Introduced 2/5/2020, by Sen. Chapin Rose SYNOPSIS AS INTRODUCED:
410 ILCS 513/31.11 new
Amends the Genetic Information Privacy Act. Provides that it is unlawful for any person or business to disclose an individual's genetic information to third parties specifically for marketing, advertising, or sales purposes unless the individual, or his or her legal guardian or legally authorized representative, consents in writing to the disclosure. Provides that any request for consent to disclose an individual's genetic information to third parties for marketing, advertising, or sales purposes must be provided in a written notice separate from any other communication that clearly and conspicuously states how the information will be disclosed, including to whom the information will be disclosed and how the information will be used by the recipient, seeks the individual's, or his or her legal guardian's or legally authorized representative's, consent to disclosure, and informs the individual, or his or her legal guardian or legally authorized representative, of how to cancel consent to disclosure once given.
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A BILL FOR
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AN ACT concerning health.
Be it enacted by the People of the State of Illinois,
represented in the General Assembly:
Section 5. The Genetic Information Privacy Act is amended
by adding Section 31.11 as follows:
(410 ILCS 513/31.11 new)
Sec. 31.11. Uses and disclosures for marketing,
advertising, or sales. It is unlawful for any person or
business to disclose an individual's genetic information to
third parties specifically for marketing, advertising, or
sales purposes unless the individual, or his or her legal
guardian or legally authorized representative, consents in
writing to the disclosure. Any request for consent to disclose
an individual's genetic information to third parties for
marketing, advertising, or sales purposes must be provided in a
written notice separate from any other communication that
clearly and conspicuously states how the information will be
disclosed, including to whom the information will be disclosed
and how the information will be used by the recipient, seeks
the individual's, or his or her legal guardian's or legally
authorized representative's, consent to disclosure, and
informs the individual, or his or her legal guardian or legally
authorized representative, of how to cancel consent to

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disclosure once given.