Bill Text: MI HR0162 | 2011-2012 | 96th Legislature | Introduced
Bill Title: A resolution to declare December 4th, 2011, as Pallister-Killian Syndrome Awareness Day in the state of Michigan.
Spectrum: Bipartisan Bill
Status: (Passed) 2011-11-29 - Adopted [HR0162 Detail]
Download: Michigan-2011-HR0162-Introduced.html
Rep. O'Brien offered the following resolution:
House Resolution No. 162.
A resolution to declare December 4th, 2011, as Pallister-Killian Syndrome Awareness Day in the state of Michigan.
Whereas, Pallister-Killian Syndrome (PKS) is a rare genetic disorder resulting from the double duplication of the short arm of chromosome 12, causing children to suffer low muscle tone, seizures, global developmental delays, hearing and vision loss among other conditions; and
Whereas, Pallister-Killian Syndrome happens randomly at conception and for no known reason. It is thought that there are under 200 diagnosed cases of PKS in the world. However, many doctors believe that the incidence of PKS is much higher. As many as 2,000 possible cases exist in the United States alone. Improper testing methods and lack of awareness of this condition are the main causes of these undiagnosed cases; and
Whereas, It is the goal of this resolution to promote research, education, and raise awareness within the medical community to ensure early diagnoses of children with Pallister-Killian Syndrome; and
Whereas, Increased awareness of this condition will help families and caregivers of children with PKS acquire the resources and support they need to manage this disorder; now, therefore, be it
Resolved by the House of Representatives, That the members of this legislative body declare December 4th, 2011, as Pallister-Killian Awareness Day in the state of Michigan.
