Bill Text: NY A00211 | 2013-2014 | General Assembly | Introduced
Bill Title: Enacts Aidan's law to require adrenoleukodystrophy screening of newborns.
Spectrum: Moderate Partisan Bill (Democrat 35-6)
Status: (Introduced - Dead) 2014-01-08 - referred to health [A00211 Detail]
Download: New_York-2013-A00211-Introduced.html
S T A T E O F N E W Y O R K
________________________________________________________________________
211
2013-2014 Regular Sessions
I N A S S E M B L Y
(PREFILED)
January 9, 2013
___________
Introduced by M. of A. BRENNAN -- read once and referred to the Commit-
tee on Health
AN ACT to amend the public health law, in relation to requiring adreno-
leukodystrophy screening of newborns
THE PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM-
BLY, DO ENACT AS FOLLOWS:
1 Section 1. This act shall be known and may be cited as "Aidan's Law".
2 S 2. Subdivision (a) of section 2500-a of the public health law, as
3 amended by chapter 863 of the laws of 1986, is amended to read as
4 follows:
5 (a) It shall be the duty of the administrative officer or other person
6 in charge of each institution caring for infants twenty-eight days or
7 less of age and the person required in pursuance of the provisions of
8 section forty-one hundred thirty of this chapter to register the birth
9 of a child, to cause to have administered to every such infant or child
10 in its or his care a test for phenylketonuria, homozygous sickle cell
11 disease, hypothyroidism, branched-chain ketonuria, galactosemia, homo-
12 cystinuria, ADRENOLEUKODYSTROPHY and such other diseases and conditions
13 as may from time to time be designated by the commissioner in accordance
14 with rules or regulations prescribed by the commissioner. Testing, the
15 recording of the results of such tests, tracking, follow-up reviews and
16 educational activities shall be performed at such times and in such
17 manner as may be prescribed by the commissioner. The commissioner shall
18 promulgate regulations setting forth the manner in which information
19 describing the purposes of the requirements of this section shall be
20 disseminated to parents or a guardian of the infant tested.
21 S 3. This act shall take effect on the one hundred eightieth day after
22 it shall have become a law; provided, however, that effective immediate-
23 ly, the addition, amendment and/or repeal of any rule or regulation
24 necessary for the implementation of this act on its effective date are
25 authorized and directed to be made and completed on or before such
26 effective date.
EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
[ ] is old law to be omitted.
LBD03768-01-3
