Bill Text: NY A08134 | 2011-2012 | General Assembly | Amended


Bill Title: Authorizes the establishment of a long term care community in Columbia county known as Camphill Ghent, Inc. to provide integrated services to certain persons.

Spectrum: Bipartisan Bill

Status: (Introduced - Dead) 2011-06-16 - substituted by s4851a [A08134 Detail]

Download: New_York-2011-A08134-Amended.html
                           S T A T E   O F   N E W   Y O R K
       ________________________________________________________________________
                                        8134--A
                              2011-2012 Regular Sessions
                                 I N  A S S E M B L Y
                                     June 2, 2011
                                      ___________
       Introduced by M. of A. WEISENBERG, MOLINARO -- read once and referred to
         the Committee on Health -- committee discharged, bill amended, ordered
         reprinted as amended and recommitted to said committee
       AN  ACT  relating  to  authorizing the establishment of a long term care
         community in Columbia county known as Camphill Ghent, Inc. to  provide
         integrated services to certain persons
         THE  PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM-
       BLY, DO ENACT AS FOLLOWS:
    1    Section 1.  Legislative intent. New York state has long recognized the
    2  need to support a full continuum of long  term  care  services  for  the
    3  aging  that  supports  the  ability  of  seniors to remain in integrated
    4  community settings for as long as possible. The state has offered  simi-
    5  lar  support  to allow persons with developmental disabilities and their
    6  caregivers to live in community settings, but for the most part  not  in
    7  integrated  housing  arrangements. Further, the state does not currently
    8  support a  service  model  that  adequately  supports  the  increasingly
    9  sophisticated  long term health care needs of persons with developmental
   10  disabilities who are elderly in an  integrated  community  setting  that
   11  includes elderly persons with developmental disabilities and others.
   12    The  Legislature finds that the Camphill movement has a long tradition
   13  of providing services to  persons  with  developmental  disabilities  in
   14  fully  integrated  community  settings  through its worldwide network of
   15  planned, intentional communities serving persons with and without devel-
   16  opmental disabilities. Much more than providers of  basic  services  for
   17  people  with  developmental  disabilities, Camphill communities offer an
   18  environment where people of all ages and abilities share home, work  and
   19  social  activities  and  enjoy  a  rich  artistic and cultural life with
   20  opportunities for spiritual  expression  and  dignified  work.  Camphill
   21  communities  rely  on  both  paid  and  volunteer workers to ensure that
   22  persons with developmental disabilities can realize their full potential
        EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
                             [ ] is old law to be omitted.
                                                                  LBD11097-02-1
       A. 8134--A                          2
    1  through constructive and productive interactions as fully  participatory
    2  members of their communities.
    3    The  Legislature  further  finds that members of such communities must
    4  frequently leave those communities when they develop  long  term  health
    5  care  needs  that  cannot be addressed in those settings. In such cases,
    6  they are often admitted to  less  integrated  settings  that  negatively
    7  impact their quality of life and generate costs to those individuals and
    8  to  the state that would not be necessary if a more appropriate alterna-
    9  tive were available. In recognition of this fact, Camphill Village  USA,
   10  Inc., which currently operates a Camphill community in Copake, New York,
   11  is  in  the  process of developing a community in Ghent, New York, under
   12  the auspices of Camphill Ghent, Inc.,  ("Camphill  Ghent"),  that  would
   13  provide  an array of long term care services, including assisted living,
   14  to persons with and without developmental disabilities in  the  Camphill
   15  tradition.
   16    The  Legislature  further  finds  that  the  Camphill Ghent project is
   17  consistent with the goal of both the department of health and the office
   18  for people with developmental disabilities  to  provide  cost  effective
   19  services  in  the  most  integrated  setting appropriate to the needs of
   20  residents. In fact, Camphill Ghent has already received support from the
   21  state in the form of a $9.6 million grant under the Healthcare Efficien-
   22  cy and Affordability Law for New Yorkers and  the  Federal-State  Health
   23  Reform  Partnership,  pursuant to which it is subject to state oversight
   24  and regulation.
   25    However, there are currently legislative barriers to the full realiza-
   26  tion of the Camphill Ghent goal,  including  barriers  against  allowing
   27  residents  to  age  in  place,  barriers  against  full  funding for the
   28  services necessary for persons living in a fully integrated setting  who
   29  have  both  developmental  disabilities and significant long term health
   30  care needs, and barriers against the use of volunteer services  provided
   31  by the potential residents of the new community. In the past, the Legis-
   32  lature has enacted legislation to support a Camphill-related facility in
   33  New  York  state  by removing such barriers.  Moreover, Camphill Village
   34  has a proven track record of providing services at  substantially  lower
   35  cost  than comparable providers. Accordingly, the Legislature finds that
   36  it is in the best interests of the state to establish Camphill Ghent  as
   37  a  unique  program  to  provide  long term care services to persons with
   38  developmental disabilities and others in an integrated community setting
   39  in a manner that allows such individuals to age in place with all appro-
   40  priate state supports, and without the barriers that will  prevent  such
   41  persons from becoming fully participatory members of their community.
   42    S 2. The Legislature hereby authorizes the establishment of a communi-
   43  ty  in Columbia county known as Camphill Ghent, Inc. (hereinafter "Camp-
   44  hill Ghent"), that is specifically designed to provide  long  term  care
   45  and  other  services  to  persons  with  developmental  disabilities and
   46  others.  Such community shall:
   47    (a) include, at a minimum, an assisted living program  as  defined  in
   48  section  461-l  of  the  social  services  law, other adult home beds as
   49  defined in subdivision 25 of section 2 of the social services  law,  and
   50  unlicensed  housing  targeted  to  seniors aged 55 and over comprised of
   51  self-contained studio, one bedroom and two bedroom  units  connected  to
   52  common areas for common dining and recreation, and two and three bedroom
   53  independent housing units;
   54    (b)  include  a  series  of buildings for common use that will house a
   55  variety of non-medical services available to community residents;
       A. 8134--A                          3
    1    (c) include both persons with developmental disabilities  and  persons
    2  without developmental disabilities among the residents;
    3    (d)  include  extensive  use  of volunteers to supplement the services
    4  provided by the required professional staff; and
    5    (e) provide regular reports to the state  consistent  with  its  obli-
    6  gations under section 2818 of the public health law.
    7    S  3.  Notwithstanding subdivision 6 of section 461-c and subparagraph
    8  (ii) of paragraph (d) of subdivision 1 and subparagraph (iii)  of  para-
    9  graph  (d) of subdivision 2 of section 461-l of the social services law,
   10  an eligible person who has been admitted to the adult home  or  assisted
   11  living  program  at  Camphill Ghent, who is otherwise no longer eligible
   12  for participation in an adult home or assisted  living  program  because
   13  such person is in need of continual nursing or medical care, chronically
   14  bedfast  or  chairfast, or cognitively, physically or medically impaired
   15  to such a degree that his or her safety would otherwise  be  endangered,
   16  may  remain  in  the  adult  home or assisted living program at Camphill
   17  Ghent provided  that  the  program  provides  such  additional  nursing,
   18  medical  or  other  care  as  necessary for such person to be safely and
   19  adequately cared for, as determined by the program and  such  person  or
   20  his  or  her  legal  representative.  The  rates payable to the assisted
   21  living program at Camphill Ghent may be adjusted to reflect all or  part
   22  of the cost of such additional medical, nursing or other care.
   23    S 4. Where eligible persons residing in the assisted living program at
   24  Camphill  Ghent,  or  persons residing in the assisted living program at
   25  Camphill Ghent pursuant to section three of this act, would otherwise be
   26  eligible to reside in a supervised individualized  residential  alterna-
   27  tive  established  pursuant  to  regulations  of the commissioner of the
   28  office for people with developmental disabilities, the  assisted  living
   29  program  at  Camphill  Ghent shall be entitled to a supplemental payment
   30  from the office for people with developmental disabilities equal to  the
   31  difference between the assisted living program rate attributable to that
   32  person  and  the  regional average supervised individualized residential
   33  alternative rate that would have been paid had that person resided in  a
   34  supervised individualized residential alternative, inclusive of both the
   35  residential  habilitation  and room and board components, trended to the
   36  current operating year and  annually  updated.  Such  supplemental  rate
   37  shall be used to support additional case management services, protective
   38  oversight and the following residential habilitation services, as appro-
   39  priate:  training,  support  and  assistance in pursuing personal valued
   40  outcomes, self-advocacy, relationship building, and  self  direction  in
   41  making  informed  choices;  training, support and assistance in personal
   42  hygiene tasks; training, support  and  assistance  in  self-care  tasks;
   43  training,  support  and assistance in general household chores including
   44  meal preparation; mobility training; training, support and assistance in
   45  personal health care; training to maximize  personal  financial  manage-
   46  ment;  training,  support and assistance in appropriate normative social
   47  behaviors and community inclusion activities; training  in  fire  evacu-
   48  ation  procedures  and  other  appropriate  life  safety activities; and
   49  necessary transportation. The Legislature shall appropriate the  funding
   50  necessary to support such supplemental payment on an annual basis. In no
   51  event  shall the adult home or assisted living program at Camphill Ghent
   52  be required to be licensed under any provision of the mental hygiene law
   53  by virtue of such supplemental payment or the services it supports.
   54    S 5. Camphill Ghent shall be exempt from the following  provisions  of
   55  the  social  services  law: subdivision 6 of section 461-c of the social
   56  services law regarding retention standards  in  adult  care  facilities;
       A. 8134--A                          4
    1  subdivision  4  of  section  461-d  of the social services law regarding
    2  compensation of residents of certain adult care facilities for  services
    3  performed  on  behalf of such adult care facility; and subparagraph (ii)
    4  of  paragraph  (d)  of  subdivision  1  of  section  461-l of the social
    5  services law regarding retention standards in assisted living  programs.
    6  Camphill  Ghent shall also be exempt from subdivision 15 of section 4651
    7  and section 4654 of the public health law  regarding  enhanced  assisted
    8  living  certification. The exemption from subdivision 6 of section 461-c
    9  of the social services law and subparagraph (ii)  of  paragraph  (d)  of
   10  subdivision  1  of  section 461-l of the social services law shall apply
   11  only to the extent that Camphill Ghent meets the requirements of section
   12  three of this act.
   13    S 6. This act shall take effect immediately.
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