Bill Text: NY J02199 | 2023-2024 | General Assembly | Introduced

---

Bill Title: Memorializing Governor Kathy Hochul to proclaim May 2024, as Neurofibromatosis Month in the State of New York

Spectrum: Partisan Bill (Republican 1-0)

Status: (Passed) 2024-04-09 - ADOPTED [J02199 Detail]

Download: New_York-2023-J02199-Introduced.html

---

Senate Resolution No. 2199

BY: Senator TEDISCO

        MEMORIALIZING  Governor  Kathy  Hochul to proclaim
        May 2024, as Neurofibromatosis Month in the State of
        New York

  WHEREAS, It is the custom of  this  Legislative  Body  to  recognize
official  months  that  are  set  aside to increase awareness of serious
illnesses that affect the lives of citizens of New York State; and

  WHEREAS, This  Legislative  Body  is  justly  proud  to  memorialize
Governor  Kathy  Hochul to proclaim May 2024, as Neurofibromatosis Month
in the State of New York, in conjunction with the observance of National
Neurofibromatosis Month; and

  WHEREAS, Neurofibromatosis  (NF),  a  debilitating  tumor  disorder,
affects more than 130,000 Americans; and

  WHEREAS, Neurofibromatosis Northeast has worked for over 30 years on
its mission to find a cure for NF; and

  WHEREAS,  With  a  mission  to  finding a treatment and cure for NF,
Neurofibromatosis Northeast promotes  research,  creates  awareness  and
supports those who are affected by NF; and

  WHEREAS,   Growing   awareness  of  NF  has  resulted  in  increased
investment in research through private charities such  as  NF  Northeast
and  the  NF  Research  Program  in  the Department of Defense which has
resulted in new clinical trials involving  application  of  drugs  which
have been shown to reduce malignant tumors in cancer; and

  WHEREAS, In 2019, the FDA approved the use of Koselugo (selumetinib)
for  treatment  of NF1, and promising science using combination therapy,
gene therapy and bacterial  therapy  has  led  to  new  clinical  trials
offering hope for families dealing with the uncertainties of NF; and

  WHEREAS,  Increased  knowledge  of  NF  will  help initiate critical
research;  NF  patients  and  their  families  are  determined  to  make
Neurofibromatosis a household word; and

  WHEREAS,  Proliferation  of  awareness  about  NF has helped educate
clinicians  regarding  the  disease  and  treatment,  and  has  enhanced
opportunities for patients to receive treatment from knowledgeable local
clinicians  such  as Drs. Lauren Weintraub and Katharine Halligan of the
Melodies Center at Albany Medical Center; and

  WHEREAS, It is imperative that there be greater  awareness  of  this
serious  health condition, and more must be done to increase activity at
the local, State and National levels; now, therefore, be it

  RESOLVED, That this Legislative Body pause in its  deliberations  to
memorialize   Governor   Kathy   Hochul   to   proclaim   May  2024,  as
Neurofibromatosis Month in the State of New York; and be it further

  RESOLVED, That a copy of this  Resolution,  suitably  engrossed,  be
transmitted  to The Honorable Kathy Hochul, Governor of the State of New
York.