US Congress Senate Bill 2744 (Prior Session Legislation)

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Spectrum: Bipartisan Bill
Status: Introduced on April 5 2016 - 25% progression, died in committee
Action: 2016-04-05 - Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Pending: Senate Health, Education, Labor, And Pensions Committee
Text: Latest bill text (Introduced) [PDF]

Genetic Research Privacy Protection Act This bill amends the Public Health Service Act to revise provisions regarding disclosure by researchers of the identifiable, sensitive information of research subjects. The Department of Health and Human Services (HHS) must prohibit researchers from disclosing such information from federally funded research to persons not connected to the research. Researchers may apply to have other research covered by this prohibition. Disclosures of such information are permitted if required by law, necessary for the medical treatment of the research subject, made with the consent of the subject, or made for the purposes of other research that is in compliance with regulations regarding protection of subjects. HHS may exempt identifiable information collected for biomedical research from disclosure under the Freedom of Information Act.

Genetic Research Privacy Protection Act

Sen. Elizabeth Warren [D-MA]

Sen. Michael Enzi [R-WY]

Date	Chamber	Action
2016-04-05	Senate	Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

SB2713 (Related) 2016-04-18 - Placed on Senate Legislative Calendar under General Orders. Calendar No. 428.

Type	Source
Summary	https://www.congress.gov/bill/114th-congress/senate-bill/2744/all-info
Text	https://www.congress.gov/114/bills/s2744/BILLS-114s2744is.pdf