Bill Text: CA AB2034 | 2011-2012 | Regular Session | Introduced

NOTE: There are more recent revisions of this legislation. Read Latest Draft

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Bill Title: Medical care: genetically handicapping conditions.

Spectrum: Partisan Bill (Democrat 2-0)

Status: (Vetoed) 2012-09-29 - Consideration of Governor's veto pending. [AB2034 Detail]

Download: California-2011-AB2034-Introduced.html

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BILL NUMBER: AB 2034	INTRODUCED
	BILL TEXT


INTRODUCED BY   Assembly Member Fuentes
   (Principal coauthor: Assembly Member Bonilla)

                        FEBRUARY 23, 2012

   An act to amend Section 125130 of the Health and Safety Code,
relating to health services.


	LEGISLATIVE COUNSEL'S DIGEST


   AB 2034, as introduced, Fuentes. Medical care: genetically
hanidcapping conditions.
   Existing law, the Holden-Moscone-Garamendi Genetically Handicapped
Person's Program, requires the Director of Health Care Services to
establish and administer a program for the medical care of persons
with specified genetically handicapping conditions and for persons
with specified hereditary metabolic disorders. That law also requires
the program to provide access to social support services that may
help ameliorate problems that are attendant to genetically
handicapping conditions. Existing law authorizes the director to
expand the list of genetically handicapping conditions.
   This bill would add familial amyotrophic lateral sclerosis to the
list of genetically handicapping conditions covered under the act.
   Vote: majority. Appropriation: no. Fiscal committee: yes.
State-mandated local program: no.


THE PEOPLE OF THE STATE OF CALIFORNIA DO ENACT AS FOLLOWS:

  SECTION 1.  Section 125130 of the Health and Safety Code is amended
to read:
   125130.  The Director of Health  Care  Services shall
establish and administer a program for the medical care of persons
with genetically handicapping conditions, including cystic fibrosis,
hemophilia, sickle cell disease, Huntington's disease, Friedreich's
Ataxia, Joseph's disease, Von Hippel-Landau syndrome,  familial
amyotrophic lateral sclerosis,  and the following hereditary
metabolic disorders: phenylketonuria, homocystinuria, branched chain
amino acidurias, disorders of propionate and methylmalonate
metabolism, urea cycle disorders, hereditary orotic aciduria, Wilson'
s Disease, galactosemia, disorders of lactate and pyruvate
metabolism, tyrosinemia, hyperornithinemia, and other genetic organic
acidemias that require specialized treatment or service available
from only a limited number of program-approved sources.
   The program shall also provide access to social support services,
that may help ameliorate the physical, psychological, and economic
problems attendant to genetically handicapping conditions, in order
that the genetically handicapped person may function at an optimal
level commensurate with the degree of impairment.
   The medical and social support services may be obtained through
physicians and surgeons, genetically handicapped person's program
specialized centers, and other providers that qualify pursuant to the
regulations of the department to provide the services. "Medical
care," as used in this section, is limited to noncustodial medical
and support services.
   The director, with the guidance of the Advisory Committee on
Genetically Handicapped Person's Program, may, by regulation, expand
the list of genetically handicapping conditions covered under this
article. The director shall adopt regulations that are necessary for
the implementation of this article. The director, with the approval
of the advisory committee, shall establish priorities for the use of
funds and provision of services under this article.