Bill Text: CA AB2034 | 2011-2012 | Regular Session | Enrolled
Bill Title: Medical care: genetically handicapping conditions.
Spectrum: Partisan Bill (Democrat 2-0)
Status: (Vetoed) 2012-09-29 - Consideration of Governor's veto pending. [AB2034 Detail]
Download: California-2011-AB2034-Enrolled.html
BILL NUMBER: AB 2034 ENROLLED
BILL TEXT
PASSED THE SENATE AUGUST 23, 2012
PASSED THE ASSEMBLY AUGUST 27, 2012
AMENDED IN SENATE AUGUST 21, 2012
AMENDED IN SENATE JUNE 15, 2012
AMENDED IN ASSEMBLY MAY 25, 2012
AMENDED IN ASSEMBLY MARCH 29, 2012
AMENDED IN ASSEMBLY MARCH 14, 2012
INTRODUCED BY Assembly Member Fuentes
(Principal coauthor: Assembly Member Bonilla)
FEBRUARY 23, 2012
An act to add and repeal Section 125191.5 of the Health and Safety
Code, relating to health services.
LEGISLATIVE COUNSEL'S DIGEST
AB 2034, Fuentes. Medical care: genetically handicapping
conditions.
Existing law, the Holden-Moscone-Garamendi Genetically Handicapped
Persons Program (GHPP), requires the Director of Health Care
Services to establish and administer a program for the medical care
of persons with specified genetically handicapping conditions and for
persons with specified hereditary metabolic disorders.
Existing law, the federal Patient Protection and Affordable Care
Act (PPACA), among other provisions, reformed certain aspects of the
private health insurance industry and public health insurance
programs.
This bill would require the State Department of Health Care
Services to prepare a report on the coverage needs of the population
served by the GHPP after the implementation of the PPACA. This bill
would require the report to address, among other things, preservation
of the availability of wrap-around services that would otherwise not
be available through the PPACA and the extent to which a person with
genetic amyotrophic lateral sclerosis will continue to have unmet
medical needs after implementation of the PPACA. This bill would
require the department to submit the report to the relevant fiscal
and policy committees of the Legislature by January 1, 2015.
THE PEOPLE OF THE STATE OF CALIFORNIA DO ENACT AS FOLLOWS:
SECTION 1. Section 125191.5 is added to the Health and Safety
Code, to read:
125191.5. (a) The department shall prepare a report on the
coverage needs of the population served by the Genetically
Handicapped Persons Program after implementation of the federal
Patient Protection and Affordable Care Act (Public Law 111-148). The
report shall address all of the following:
(1) Wrap-around services that will not be available, in the
absence of the Genetically Handicapped Persons Program, after
implementation of the federal Patient Protection and Affordable Care
Act.
(2) Continued coverage for any residual services and populations.
(3) The extent to which a person with genetic amyotrophic lateral
sclerosis (ALS) will continue to have unmet medical needs after
implementation of the federal Patient Protection and Affordable Care
Act.
(b) In developing the report described in subdivision (a), the
department may consult with stakeholders, representatives of
Genetically Handicapped Persons Program providers, persons with
genetically handicapped conditions, special care centers, genetic
disease medical experts, and other interested persons.
(c) The department shall submit, in accordance with Section 9795
of the Government Code, the report described in subdivision (a) to
the relevant fiscal and policy committees of the Legislature by
January 1, 2015.
(d) This section shall remain in effect only until January 1,
2019, and as of that date is repealed, unless a later enacted
statute, that is enacted before January 1, 2019, deletes or extends
that date.
