Bill Text: CA SR28 | 2019-2020 | Regular Session | Introduced

NOTE: There are more recent revisions of this legislation. Read Latest Draft

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Bill Title: Relative to Prader-Willi Syndrome Awareness Month.

Spectrum: Bipartisan Bill

Status: (Passed) 2019-05-13 - Read. Adopted. (Ayes 37. Noes 0. Page 1023.) [SR28 Detail]

Download: California-2019-SR28-Introduced.html

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CALIFORNIA LEGISLATURE— 2019–2020 REGULAR SESSION

Senate Resolution

No. 28

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Introduced by Senator Wilk
(Coauthors: Senators Bates, Beall, Chang, Dodd, Nielsen, Portantino, and Wieckowski)

March 27, 2019

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Relative to Prader-Willi Syndrome Awareness Month.

LEGISLATIVE COUNSEL'S DIGEST

SR 28, as introduced, Wilk.

Digest Key

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Bill Text

WHEREAS, Prader-Willi syndrome is a complex genetic disorder that occurs in approximately one out of every 15,000 births; and

WHEREAS, Prader-Willi syndrome is the most commonly known genetic cause of life-threatening obesity; and

WHEREAS, Prader-Willi syndrome affects males and females with equal frequency and all races and ethnicities; and

WHEREAS, Prader-Willi syndrome causes an extreme and insatiable appetite, often resulting in morbid obesity; and

WHEREAS, Morbid obesity is the major cause of death for individuals with Prader-Willi syndrome; and

WHEREAS, Prader-Willi syndrome causes cognitive and learning disabilities and behavioral difficulties, including obsessive-compulsive disorder and difficulty controlling emotions; and

WHEREAS, The hunger, metabolic, and behavioral characteristics of Prader-Willi syndrome force affected individuals to require constant and lifelong supervision in a controlled environment; and

WHEREAS, Studies have shown that individuals with Prader-Willi syndrome have a high morbidity and mortality rate; and

WHEREAS, There is no known cure for Prader-Willi syndrome; and

WHEREAS, Early diagnosis of Prader-Willi syndrome allows families to access treatment, intervention services, and support from health professionals, advocacy organizations, and other families who are dealing with the syndrome; and

WHEREAS, Recently discovered treatments, including the use of human growth hormone, are improving the quality of life for individuals with Prader-Willi syndrome and offer new hope to families, but many difficult symptoms associated with the syndrome remain untreated; and

WHEREAS, Increased research into Prader-Willi syndrome may lead to a better understanding of the syndrome, more effective treatments, and an eventual cure for the syndrome and is likely to lead to a better understanding of common public health concerns, including childhood obesity and mental health; and

WHEREAS, Advocacy organizations have designated May as Prader-Willi Syndrome Awareness Month; now, therefore, be it

Resolved by the Senate of the State of California, That the Senate supports raising awareness and educating the public about Prader-Willi syndrome and applauds the efforts of advocates and organizations that encourage awareness, promote research, and provide education, support, and hope to those impacted by Prader-Willi syndrome; and be it further

Resolved, That the Senate recognizes the commitment of parents, families, researchers, health professionals, and others dedicated to finding an effective treatment and eventual cure for Prader-Willi syndrome and hereby proclaims the month of May as Prader-Willi Syndrome Awareness Month; and be it further

Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.