Bill Text: NY S01890 | 2023-2024 | General Assembly | Introduced

NOTE: There are more recent revisions of this legislation. Read Latest Draft

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Bill Title: Establishes the "Syd O. Sotillo Sickle Cell Treatment Act" which designates sickle cell centers for excellence and outpatient treatment centers.

Spectrum: Moderate Partisan Bill (Democrat 16-2)

Status: (Engrossed - Dead) 2024-06-03 - referred to ways and means [S01890 Detail]

Download: New_York-2023-S01890-Introduced.html

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                STATE OF NEW YORK
        ________________________________________________________________________

                                          1890

                               2023-2024 Regular Sessions

                    IN SENATE

                                    January 17, 2023
                                       ___________

        Introduced  by Sens. SANDERS, COMRIE, GIANARIS, JACKSON, KENNEDY, KRUEG-
          ER, MAYER, MYRIE, PARKER, RAMOS, SEPULVEDA, SKOUFIS -- read twice  and
          ordered  printed, and when printed to be committed to the Committee on
          Health

        AN ACT to amend the public health law, in relation to  establishing  the
          "Sickle Cell Treatment Act"; and making an appropriation therefor

          The  People of the State of New York, represented in Senate and Assem-
        bly, do enact as follows:

     1    Section 1. This act shall be known and may be  cited  as  the  "Sickle
     2  Cell Treatment Act".
     3    §  2. The public health law is amended by adding a new section 2807-aa
     4  to read as follows:
     5    § 2807-aa. Sickle cell centers for excellence and outpatient treatment
     6  centers. 1. Centers for sickle cell care  excellence.  The  commissioner
     7  shall  designate  five general hospitals or hospices under article forty
     8  of this chapter, upon successful application, as centers for sickle cell
     9  care excellence. The designations shall be made through  an  application
    10  designed  by  the  department,  and based on service, staffing and other
    11  criteria as developed by the commissioner.  The  centers  of  excellence
    12  shall  provide  specialized sickle cell disease care, treatment, pallia-
    13  tive care, education and related services and shall conduct  specialized
    14  research into the care, treatment and management of sickle cell disease.
    15  Designation  as a center for sickle cell care excellence shall not enti-
    16  tle a center to enhanced reimbursement, but may be utilized in  outreach
    17  and  other  promotional  activities.  Each  center  for sickle cell care
    18  excellence shall affiliate and cooperate with major  centers  of  higher
    19  learning,  including  medical colleges, and life science research insti-
    20  tutes in the state.  The state university shall enter  into  appropriate
    21  legal agreements to enable this cooperation. Each center for sickle cell
    22  care excellence shall receive two hundred thousand dollars per year from

         EXPLANATION--Matter in italics (underscored) is new; matter in brackets
                              [ ] is old law to be omitted.
                                                                   LBD05963-01-3
        S. 1890                             2

     1  the  department,  from amounts appropriated for that purpose, to be used
     2  on sickle cell disease research.
     3    2.  Outpatient treatment centers. The commissioner shall designate ten
     4  hospitals, distributed based on sickle cell patient  population  concen-
     5  trations,  as  sickle  cell  outpatient  treatment  centers  which shall
     6  provide patients treatment for sickle cell  disease  as  an  outpatient.
     7  Each  sickle  cell outpatient treatment center shall receive one hundred
     8  thousand dollars per year from the department, from amounts appropriated
     9  for that purpose, to be used to ensure the proper management and  equip-
    10  ping of the centers to care for sickle cell patients.
    11    §  3. Subdivision 8 of section 3331 of the public health law, as added
    12  by section 7-a of part D of chapter 57 of the laws of 2018,  is  amended
    13  to read as follows:
    14    8.  No  opioids  shall  be prescribed to a patient initiating or being
    15  maintained on opioid treatment for pain which has lasted more than three
    16  months or past the time of normal tissue  healing,  unless  the  medical
    17  record contains a written treatment plan that follows generally accepted
    18  national  professional  or  governmental guidelines. The requirements of
    19  this paragraph shall not apply in the case of  patients  who  are  being
    20  treated  for cancer or sickle cell disease that is not in remission, who
    21  are in hospice or other end-of-life care, or whose pain is being treated
    22  as part of palliative care practices.
    23    § 4. This act shall take effect immediately.