Bill Text: NY S06928 | 2021-2022 | General Assembly | Introduced

NOTE: There are more recent revisions of this legislation. Read Latest Draft

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Bill Title: Provides for a myalgic encephalomyelitis/chronic fatigue syndrome ("ME/CFS") education and outreach program.

Spectrum: Partisan Bill (Democrat 9-0)

Status: (Introduced - Dead) 2022-05-11 - SUBSTITUTED BY A7712B [S06928 Detail]

Download: New_York-2021-S06928-Introduced.html

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                STATE OF NEW YORK
        ________________________________________________________________________

                                          6928

                               2021-2022 Regular Sessions

                    IN SENATE

                                      May 20, 2021
                                       ___________

        Introduced  by  Sen.  RIVERA -- read twice and ordered printed, and when
          printed to be committed to the Committee on Health

        AN  ACT  to  amend  public  health  law,  in  relation  to  the  myalgic
          encephalomyelitis/chronic  fatigue  syndrome  education  and  outreach
          program

          The People of the State of New York, represented in Senate and  Assem-
        bly, do enact as follows:

     1    Section  1.  Subdivision  1 of section 207 of the public health law is
     2  amended by adding a new paragraph (p) to read as follows:
     3    (p) Myalgic encephalomyelitis/chronic fatigue syndrome  ("ME/CFS"),  a
     4  multi-system  disease  associated  with  neurological, immunological and
     5  energy metabolism impairment characterized by long-standing and  debili-
     6  tating  fatigue  with  a  delayed  exacerbation  of symptoms and loss of
     7  stamina following even minimal mental or physical function; symptoms may
     8  also  include  cognitive  dysfunction,  sleep  abnormalities,  autonomic
     9  manifestations  and  pain; susceptibility may be genetic but the disease
    10  can be triggered by infection in the majority of patients. ME/CFS  is  a
    11  common  chronic  consequence  of  viruses, with ten to twelve percent of
    12  those with serious infection going on to develop the disease. Given that
    13  there are no diagnostic tests or biomarkers, and  no  federal  food  and
    14  drug  administration  approved  treatments  for  ME/CFS,  diagnosis  and
    15  management of this disease can be more difficult. There are few clinical
    16  experts available in New York  state,  so  education  and  awareness  of
    17  health  care providers and the public is imperative. Education materials
    18  shall include but not be limited to information about diagnosing  ME/CFS
    19  including  specific  scientific  information  about what the disease is,
    20  what the symptoms are, who is susceptible and how patients are currently
    21  treated. ME/CFS education and awareness  materials  shall  also  include
    22  recognition  that  ME/CFS is a real disease, is not a psychiatric disor-
    23  der, is not caused by a lack of exercise  and  that  management  of  the
    24  disease can be more difficult as a result.
    25    § 2. This act shall take effect on the one hundred eightieth day after
    26  it shall have become a law.

         EXPLANATION--Matter in italics (underscored) is new; matter in brackets
                              [ ] is old law to be omitted.
                                                                   LBD11614-01-1