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| THE GENERAL ASSEMBLY OF PENNSYLVANIA |
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| HOUSE RESOLUTION |
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| INTRODUCED BY V. BROWN, MYERS, JOHNSON, HARKINS, SAINATO, BISHOP, WAGNER, BUXTON, LONGIETTI, MIRABITO, YOUNGBLOOD, PAYTON, ROEBUCK, CALTAGIRONE, BRADFORD, FREEMAN, D. COSTA, READSHAW, PRESTON, JOSEPHS, STABACK, HESS, MOUL, WATERS AND DONATUCCI, APRIL 28, 2011 |
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| REFERRED TO COMMITTEE ON APPROPRIATIONS, APRIL 28, 2011 |
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| A RESOLUTION |
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1 | Expressing an intent to maintain current funding for sickle cell |
2 | disease in order to provide for the continued medical |
3 | treatment and social services to persons living in this |
4 | Commonwealth who suffer with sickle cell disease. |
5 | WHEREAS, The funding for sickle cell disease or "SCD" in this |
6 | Commonwealth provides comprehensive medical care based on |
7 | clinical models of care and a continuum of treatment for |
8 | individuals diagnosed with SCD; and |
9 | WHEREAS, In this Commonwealth, SCD affects over 17,000 |
10 | persons and over 75,000 persons are trait carriers of the |
11 | disease; and |
12 | WHEREAS, Sickle cell disease is the most common genetic blood |
13 | disorder caused by abnormal hemoglobin molecules in the red |
14 | blood cells and is characterized by chronic anemia and episodes |
15 | of pain; and |
16 | WHEREAS, It is a global disease that affects in excess of |
17 | 100,000 persons in the United States; and |
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1 | WHEREAS, People of Mediterranean, Hispanic, Asian, Sicilian, |
2 | Greek, Italian, Indian and Turkish ancestry are also affected, |
3 | but African Americans are disproportionately affected with one |
4 | in 375 infants born with sickle cell disease and one in ten |
5 | persons with sickle cell trait; and |
6 | WHEREAS, Hispanics are the second largest population in this |
7 | Commonwealth affected by sickle cell disease, having an |
8 | incidence of one in 1,000 persons; and |
9 | WHEREAS, Complications or manifestations of SCD attribute to |
10 | increased hospitalizations requiring comprehensive medical care, |
11 | and frequent hospitalizations are often a result of strokes, |
12 | acute chest syndrome, pulmonary hypertension or kidney failure; |
13 | and |
14 | WHEREAS, Community-based programs and medical partners |
15 | collaborate to provide comprehensive services to individuals in |
16 | our Commonwealth who suffer with SCD; and |
17 | WHEREAS, It is important to maintain the current status of |
18 | sickle cell disease as an appropriated and dedicated budget line |
19 | item; and |
20 | WHEREAS, This dedicated line item will serve to reduce health |
21 | disparities and continue to enable community and medical |
22 | partners in providing a continuum of service and commitment to |
23 | individuals suffering from this devastating genetic disease; and |
24 | WHEREAS, It is critical not to reduce the funding levels for |
25 | sickle cell disease; therefore be it |
26 | RESOLVED, That the House of Representatives express its |
27 | intent to maintain current funding for sickle cell disease in |
28 | order to provide for the continued medical treatment and social |
29 | services to persons living in this Commonwealth who suffer with |
30 | sickle cell disease. |
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